Off to Melbourne we go again, Danika just loves it and is very good at flying, but all things being equal this trip didn't start out so well. We are just making our way through security at the Airport and Danika panics for some reason (not all ways clear to the rest of us) and runs straight through security screening, well it didn't go down well I run after her, two security guards grab and yell at her and there is me close behind shouting louder than them, "don't touch her she has autism". I get her and we go back through the scan Darren takes her to sit down to watch the planes while mum (me) gives the security guards a strong talking to..............need I say more!
Melbourne was good nice to see the wonderful team and they just love her to bits . We all talk surgery for two and a half hours, I am exhausted my brain feels heavy with information I have to take in. The first thing Darren and I find strange is seeing a exact copy of Danika's skull, its the strangest feeling, hard to explain what it feels like to hold your daughters skull in our hands. Danika has been having 4D imagining since birth so they have been able to make this 4D plastic copy.
This is her Skull and Danika sticking her finger in her own mouth!
The operation is
not going to be easy. There will be 11 surgeons from five specialties in the room and they think it will be at least 18hrs all things going to plan that is. If she has a seizure on the table they will try to stabilize her but may have to stop and take her to ICU and start again in a day or two. They are all very confident in her doing really well after the op and have told us she will not look good for several days as the bruising and swelling settle. This is my baby's face.............not an arm or a leg or even an ear thats need reconstruction but her FACE the so called window to her soul, I can not form words, not even in my own mind to be able to tell you how it feels to know she will look different from the beautiful girl I love. The face I stare at, have kissed a million times, the face that smiles, shouts and kisses me back!!! I'm going to leave that thought there and move on....
Here are some photos of the team of wonderful people that are the Craniofacial Team at the Royal Melbourne Children's Hospital.
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Professor Anthony Holmes
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| Danika socializing with the co-coordinator Pru and a specialist IT tech |
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| Me holding Danika's skull |
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| Mr Andrew Greensmith checking Danika out |
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| Danika happily writing her name on their paper work |
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| Andrew this is not a look of a confident man! |
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| Danika socializing still |
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| her images on the screen |
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| Her skull |
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| Planning |
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| look at you cutie pie |
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| our beautiful Danika years ago |
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| ohhhh cute chubby bubby |
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