Well tonight we are feeling a bit out of sorts, Danika is having a minor surgery in our world not so minor for other kids, She is having her PEG changed to the permanent one, she will just be there for the day. I have been talking to her about it for a few days now but I know it wont help in the morning. She has ASD and is extremely orally adverse so she is going to freak when they try to put the gas mask on her to knock her out......I hate the way I feel so useless and helpless when they put her to sleep as she is crying for me. I wish there was a different way to put her to sleep.

the current PEG

It will be really good for her when its done no more worrying about someone touching her tube or her getting it caught on the play equipment.