Monday the 25th we went to the hospital for a day procedure to have the long term PEG inserted. well we ended up staying for 6 days. The surgeon can out from Danika's op and told me all went well but how long has she had the distended stomach? My reply was since January along with loose poo and some pain and vomiting. He wanted to know why I hadn't said anything, well I have ive been working with her peadeatrition to try to solve the problem. so off to the ward we went and test after test, one very bad night in the mix were poor Danika acutally vomited poo, yep I said poo, doctors came running this is a medical emergency. More test and an unhappy mum later and Danika is back in the operation room. They still have no answer as to what is wrong or even how she managed to vomit poo.
Mum and dad and all the family and our very special friends are all saddened that Danika will have to spend her 6th birthday in hospital, 3 out of the last 6 is just so not fair!
Saturday the 30th June Danika wakes up to a decorated hospital bed, presents wrapped and nurses every where wishing her a happy birthday, the wonderful staff ordered her a cake and we had a party in the playroom, Claire brought in a box of party supplys donated by her friends at coles in Kingston and all the kids in the Peads ward all came in for a party. Thank you all it was wonderful, even one of Danika's teachers came in, all the kids had a great time with the rocket cake and the one the nurses ordered. But the best news came a little later.....
Mr E came in and told us we could go home!! woohoo yippee and THANK YOU I get to learn a few more nursing skills to help Danika's care and with a list of instructions off we go....
What a lovely night at home, Danika looked so beautiful all snug in her own bed and we all loved having her home. I found it hard to sleep lol as it wasnt the hard thin fold out bed i've slepted in for the last 5 nights....
I want to thank my friends for your support and kindness, your seemingly small offers of help and visits meant the world to both myself and Darren. It made all the difference.
Back to the hospital this week with outpatient appointments but Danika is doing ok.
She is trying to prove her point that she really is one of a kind!!!! Danika we get it.....
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