going well

Danika is back at school and mum or dad are going up a few times a day to "burp" her peg (just letting the air out)until a nurse from the Hobart hospital can teach a staff member how to do it. Danika likes her new Peg but is not keen on sleeping with a bag connected over night, it was a wonder she didnt float in the air last night it was so puffed up with air, she actually came into our room and said "my bag needs burping" oh bless her cotten socks. Saw the surgen yesterday Mr Ee and he is happy with her from a surgical side so no more Mr Ee woohoo, we also saw Dr Michelle and it still remains a mystery as to why Danika has a distended tummy and "the" vomit.... More appoinments came in the post this week for the craniofacial team in Melbourne, one for the 19th September to see an eye craniofacial/surgeon and then on the 25th to see the Neuosurgeon ahhh two trips to Melbourne a week apart, they are all going out of their way to get her in. Dr Michelle told us yesterday she is listed as an emergency case so she can have it done sooner, great thanks guys but im not sure im ready for that, the idea of a new face is not something I am finding easy to come to terms with as I have stated before I love the face she has now! If she didnt need the surgery we woudlnt be doing it, in fact I have tried to talk the doctors out of doing it. It seems in conceivable to me to change anything on my beautiful daughters face, no point in trying to even think why cant everyone see the same perfect face I see? judgment is every where those people staring at her in the shops I see you!! she sees you but luckly she doesnt understand your raised eyebrow, for now anyway......