The question

On Saturday Danika started at Cosmos a day respite play group it was from 10am till 3pm. We didnt tell her about it until the Sat morning her anxitey was fairly high but we went and she did so well, I satayed for about half an hour and off she went with a carer to play in the garden, Well done Danika you were amazing. I picked her up and she had a really good day. We were having cuddles on the couch before bed and she looks at me and says "mum I dont have a funny nose do I"

Oh no I don't want you to ask me this! I ask her why, and she tells me a boy from Cosmos said she did, Oh bub it breaks my heart too have to answer your question its not the answer I don't like its the fact that she even has to ask me, Why does my child have a funny nose? Why do children say things to her? Why do people stare at her? Oh its not easy to explain. I look her in the eye and tell her her nose is a little different but its just beautiful because its HER nose and I love it................

Danika playing dress up at Cosmos, yes my girl you really are a SUPER HERO

This presents the question what will she think after the surgery.  How will she feel when she looks into the mirror? Her lack of understanding for her age has helped in some cases, Will it help then or will it be a huge distress?...............Will she want the old nose/face back? Will I want the old face back? How will all the friends she has made at school cope will they be worried about the new way she looks? She will sound the same but not look the same, my heart stills as I think of all the challenges my beautiful little angle will have to deal with. There is a psychologist connected to the craniofacial team we will be looking to her for plenty of advice and  support.

You are my hero Danika!!