Hi all,
I haven't fallen of the face of the earth, just been busy and Danika, I am super pleased to say has been really well.
I on the other hand, have been trying really hard not to think to far ahead in regard to her surgery, but Ive been struggling with that!!!!
I watch TV with Darren after all the kids are in bed and I'm so tired so off to bed I go and then I close my eyes and all this stuff washes over me.............
We are off to RCH Melbourne on Wednesday next week to meet with Ms Alison Wray Neurosurgeon extraordinaire (she was the one to separate the conjoined twins a few years ago) to discuss how she is going to protect Danika's brain during the operation and to stop any life threatening infection. we have been told if she gets an infection its about 96% chance of mortality, so clearly her job is VITAL
I feel all strange about meeting with her, it means we are getting closer and I'm not yet ready for that.
The following week we return to RCH Melbourne to meet the eye surgeon who's job it is to protect her eye site during the operation. Again if you have missed a blog there will be 11 surgeons from 8 specialities in the room all doing their part. Ive asked myself does this make me nervous or more comfortable that there will be so many in the room? I swing from feeling good and bad about it, it really just depends so clearly I am yet to decide.
Our very special paediatrician Dr Michelle Williams from Hobart has offered to attend the surgery, she will pop in and out and keep us updated, and I know she is super excited to witness such a rare surgery. She has been with us the whole time through all the ups and the many downs, we have her mobile number and we chat if and when needed she really is a bright light in amongst this hard journey.
Danika has had a great few weeks at school. They have had cross country and she ran yes I said ran the whole way and she wasn't even the last to cross the line. And then they had book week dress up and she went as Woody.
I haven't fallen of the face of the earth, just been busy and Danika, I am super pleased to say has been really well.
I on the other hand, have been trying really hard not to think to far ahead in regard to her surgery, but Ive been struggling with that!!!!
I watch TV with Darren after all the kids are in bed and I'm so tired so off to bed I go and then I close my eyes and all this stuff washes over me.............
We are off to RCH Melbourne on Wednesday next week to meet with Ms Alison Wray Neurosurgeon extraordinaire (she was the one to separate the conjoined twins a few years ago) to discuss how she is going to protect Danika's brain during the operation and to stop any life threatening infection. we have been told if she gets an infection its about 96% chance of mortality, so clearly her job is VITAL
I feel all strange about meeting with her, it means we are getting closer and I'm not yet ready for that.
The following week we return to RCH Melbourne to meet the eye surgeon who's job it is to protect her eye site during the operation. Again if you have missed a blog there will be 11 surgeons from 8 specialities in the room all doing their part. Ive asked myself does this make me nervous or more comfortable that there will be so many in the room? I swing from feeling good and bad about it, it really just depends so clearly I am yet to decide.
Our very special paediatrician Dr Michelle Williams from Hobart has offered to attend the surgery, she will pop in and out and keep us updated, and I know she is super excited to witness such a rare surgery. She has been with us the whole time through all the ups and the many downs, we have her mobile number and we chat if and when needed she really is a bright light in amongst this hard journey.
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