A very big few days.

 Met with the brain surgeon Ms Allison Wray and she explained what her role will be during the operation but as she stated it will still be a wait and see approach as they have yet to operate on a case like Danika's. She told us the parts of the skull she will remove and I must say a huge thank you to my friend Erin for giving me the courage to ask that they don't shave Danika's head, they won't they will just remove the strip that they need to.

 She explained she will put a drain down Danika's spine for a drainage to help stop swelling. And that she will do her best to keep the Dura intact but with Danika's deformity it may well be that the dura is fuzed to the skull, This will not be good and will make her odds lower.
So the bomb drop was Darren my hubby asked if there was talk of a date for the surgery and Allison said yeah it's still the 5th and we both said the 5th of what? October she replied. I needed to sit down and I asked if she had a sick bag and I can tell you I was only half joking!
To say we are surprised is understating it a LOT.
That's just 14 days away........
I have been asked many times over the years it has taken to plan this surgery "are you worried about Danika's operation" and I have always had the same answer "I'll start to worry when I get a date" shit I have a date.........
That's all I can manage for now :)