We have been to the RCH again this time to see the Ocular surgeon and his team, had bloods done for the transfusion, photos for the surgeons and then the pharmacy for pre opp antibiotics to try to dry up as much mucus as possible (snot in the brain is bad) quote from the brain surgeon.
Got home to a freezer full of lovingly cooked food and a goodie basket, I have some of the worlds most amazing woman as my friends and these special mums all have children with different abilities as well but they found time in their world to think of us................. Kylie, Sallyanne,Kylee and Erin my MOFO (Mothers Of Faboulas Offspring) family
Our days have been flying past in a daze or a state of heightened awareness.
We spent hours with Steve Lovegrove our heartfelt photographer, Danika was great she loved it, such the little poser. Mixed emotions about it but it was fabulous there are some super special people in this world and thank you doesn't cut it, but I am thankful very thankful
Danika went to school on Friday, Darren picked her up and he wasn't expecting to have crying teachers asking him questions. We aren't sure yet if we will send her to school Monday and Tuesday as there were many kids missing from class and we don't want her getting anything.
Packing for us is a pain in the bum and while doing a load of washing I found the Do Rag she was sent from the USA from Cranio Care Bears and I had a moment then as I put it aside to pack, Ive brought a few shirts that do up at the front and her PJS all do up at the front so that's good.
We have had family visit and call and it seems strange to me to hear them talking about the operation almost like its not real, not sure why I feel like that and I'm not going to worry about it either.
Ive been busy downloading all Danika's music and her favourite TV show Pepper Pig. thinking off all the special things she may want to have with her in hospital, she has a small blue soft toy dinosaur that Claire brought her and a few other special toys that will be packed.
A special card came in the post this week
Got home to a freezer full of lovingly cooked food and a goodie basket, I have some of the worlds most amazing woman as my friends and these special mums all have children with different abilities as well but they found time in their world to think of us................. Kylie, Sallyanne,Kylee and Erin my MOFO (Mothers Of Faboulas Offspring) family
Our days have been flying past in a daze or a state of heightened awareness.
We spent hours with Steve Lovegrove our heartfelt photographer, Danika was great she loved it, such the little poser. Mixed emotions about it but it was fabulous there are some super special people in this world and thank you doesn't cut it, but I am thankful very thankful
Danika went to school on Friday, Darren picked her up and he wasn't expecting to have crying teachers asking him questions. We aren't sure yet if we will send her to school Monday and Tuesday as there were many kids missing from class and we don't want her getting anything.
Packing for us is a pain in the bum and while doing a load of washing I found the Do Rag she was sent from the USA from Cranio Care Bears and I had a moment then as I put it aside to pack, Ive brought a few shirts that do up at the front and her PJS all do up at the front so that's good.
We have had family visit and call and it seems strange to me to hear them talking about the operation almost like its not real, not sure why I feel like that and I'm not going to worry about it either.
Ive been busy downloading all Danika's music and her favourite TV show Pepper Pig. thinking off all the special things she may want to have with her in hospital, she has a small blue soft toy dinosaur that Claire brought her and a few other special toys that will be packed.
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